There were lots of interesting speakers at the celebration talking about a wide range of empowering projects. I was particularly impressed by the young women from Manchester’s Women Making History project talking passionately about international and domestic ‘period poverty’. This was a subject I briefly touched upon in my sound piece about disabled women’s health.
Disabled women’s healthcare is also a topic that BreakthroughUK is addressing through their health screening workshops. Running at the same time as D3 these initiatives will support, encourage and empower local disabled women to take action and become more politically active.
D3:Democracy Disability & Devolution
Supporting disabled women to get involved in the political process is so important because we are particularly underrepresented.
According to the Fawcett Society only TWO women MPs identify as being disabled people – under half a percent of the House of Commons! Yet the ONS estimates that approximately 8% of the working age population are disabled women.
Our lack of representation can be partly attributed to a global culture of misogynism within the political process. But I also think we face a hybrid form of misogynism, as illustrated by the awful sexism and ableism Freyja Haraldsdóttir recently experienced from other Icelandic MPs.
This intersection of misogyny and ableism is apparent within all aspects of the political process – from voting to standing in elected office.
In the UK there has even been issues at AWS (All Women Shortlists), such as the lack of step free speaking platforms and ableist attitudes. For example, one AWS candidate kept emphasising her ‘physical prowess’ during Hustings. A debating tactic which would be questioned, at the very least, if she was emphasising being white or heterosexual etc .
We have a political culture of macho-ableism which favours the loudest, rather than the most suitable, candidate. Alongside the lack of basic adjustments, this sends the message that disabled women are not expected to be part of the political process.
Recently this problem has been highlighted by shadow minister Marsha de Cordova after House of Commons authorities provided an inaccessible meeting room for an event being held to celebrate the UN’s international day of disabled people!
Hopefully initiatives like D3 and VoiceBox Cafes will go some way in changing this status quo.
For more information about D3 please see the Breakthrough website: https://www.breakthrough-uk.co.uk/democracy-disability-devolution.
To mark UKDHM I talk with Ben Lunn on his composition ‘T-4’, commissioned by Drake Music and set to be performed at DaDaFest. The work explores the history of Aktion T4 and how it parallels today’s austerity.
Our new animation, The Toiletis on tour! A few weeks ago, the tour began as Dr Jenny Slater (Reader in Education & Disability Studies) and I travelled to Reykjavik, Iceland for our animation’s WORLD PREMIERE.
Over the next year, we will be takingconversations of toilets, disability, gender and access to grassroots disability and queer arts and activist spaces internationally to different spaces, including film festivals and activist groups.
Recently I’ve attended two MMU led events that I found particularly interesting, both of which broadly examined ‘human’ ways of being, notions of creativity and human flourishing. In connection with the first of these events – Theorising Normalcy And The Mundane– I have been working with the fantastic Drake Music Innovation Lab North on my Beyond Vocal Norms sound investigation and research project. I’ll be blogging about Normalcy and Beyond Vocal Norms later this month … so watch this space.
Extending the concepts of creativity and value…
In the meantime I will focus on the second event – VCHF (Value, Creativity and Human Flourishing) – and its relevance on music making for people with significant learning disabilities. VCHF brought together artists, academics and activists to re-examine and extend the concepts of creativity and value within different arts practices. The two day symposium had a particular emphasis on what these concepts mean for people with learning disabilities, dementia and mental health problems. Concepts around creativity are of particular interest to Drake Music’s research into bespoke instruments, and how these developments invariably challenge perceptions of what musical expression is and how music is made.
The symposium featured nine internationally acclaimed speakers, and I will reflect on two sessions that were of particular relevance to many philosophical discussions we have at Drake Music. Drake Music has a core belief that everyone can fulfil their creative and musical potential if given the right opportunities.
One of the aims of the Drake Music Think2020 Education project is to explore more meaningful and inclusive frameworks for measuring musical development for those with profound and multiple learning difficulties. This can be difficult as mainstream definitions of creativity often excludes people with learning disabilities, dementia and mental health problems. Currently Drake Music Associates try to overcome this difficulty by using both the Sound of Intent framework and the Youth Music Quality framework, both of which work beyond the limitations of the ‘P-Scales’ for music education.
Co-production and human flourishing …
One of the speakers, Julian West, discussed these concepts, amongst others, in relation to music making with people living with dementia. West is a Creative Music Leader, Oboist and Consultant, and has spent 14 years working on music projects with older people. He is currently working with Spitalfields Music on an innovative project called LivingArts. LivingArts explores and celebrates the creativity of residents at a care home in East London. West and a small team of artists and musicians visit the care home each week enabling residents to express themselves through music, movement and visual arts. Manchester Camerata have been running a similar project at an early dementia centre, with huge success.
The overall aim of LivingArt was to challenge public perceptions and improve wellbeing for people living with dementia, through the creative arts. In order to meet this aim, West describes the importance of working beyond conventional ways to measure outputs, and making musical expression and co-production a core value.
The LivingArts group were invited to bring various objects to make sounds with – a particularly successful object was an old typewriter that a participant found engaging as he used to work in an office. They also had a dancer who integrated walking frames, and other disability related equipment during her session there. This all happened with the participants taking a leading role in the creative process with no pressure of defined outputs, therefore providing value for all taking part. West describes how this project also helped the artists to re-examine their own perceptions of creativity and co-production.
Like West and the LivingArts team, Drake Music associate musicians continue to re-evaluate their notions of creativity, and creative potential within the field of music production. This can be particularly challenging in a culture dominated by the language of the ‘medical model’ and ableist notions of who is ‘allowed’ to be creative, and for whom.
Who is ‘allowed’ to be creative? …
Conference organiser, and speaker Dr Lucy Burke, discussed these notions in her talk – Human Trouble and the Cognitive Difference. Dr Burke is Principle lecturer in English at the Faculty of Arts and Humanities at MMU. Prompted by Oliver Sacks essay The Autistic Artist, her session explored the ethical and ideological implications of particular concepts of creativity, personhood and the human.
In the Autistic Artist, Sacks examines a 21 year old called Jose who can allegedly only copy draw and deemed to be ‘retarded’. Sacks recognises that Jose’s artwork demonstrates the powers of imagination and expression, and describes his work as both verisimilitude, animated and richly expressive. It could be said that Sacks is being quite progressive by inferring that Jose’s ability is more than that of the stereotypical ‘idiot savant’. However, he also describes Jose’s work as child-art and primitive, whilst paradoxically deliberating whether Jose could gain a meaningful life through being employed to draw. Burke argues that Jose’s work is put under the kind of scrutiny rarely experienced by neurotypical artists. Jose’s art is ‘not allowed’ to be understood outside of the lens of diagnosis, or beyond the belief that personhood is fundamentally interconnected with work and labour.
Music therapy or music education? …
The Autistic Artist case study reminded me of the way musicians with learning disabilities and/or autism still experience harsher artistic scrutiny and barriers to creative expression. The authenticity of their musical abilities are either considered a symptom of impairment and therefore disbelieved, or used to somehow validate their initiation into the work-based notion of personhood. And whilst this validation can be empowering, the superhuman or curative disability narrative often accompanies it. Music therapy, for example, is often based around the notion that people are broken and need fixing. On the other hand music education is becoming less about the actual learning experience and more about the potential monetisation it can offer.
How do we measure music potential and value against mainstream definitions of creativity ? Leave a comment with examples of your own experiences of good or bad practice. Also If you’re interested in these kinds of philosophical discussions visit www.valueandcreativity.wordpress.com.
Blog commissioned by Drake Music.
How do we measure outcomes against normative values about what creativity actually means?
Art is ‘not allowed’ to be understood outside of the lens of diagnosis.
The design of toilets have been based on a historical model of the ‘ideal’ (hu)man, and continues to ignore the diversity of their users.
Travelling Toilet Tales …
You may have recently read about Italian creator, Maurizio Cattelan’s 18-carat solid gold toilet installation at the Guggenheim Museum, but he’s not the only artist using a toilet as an inspiration for their art. I have been commissioned to make a soundscape about toilets and utopias, which I have recently finished working on.
Constructed from a collection of toilet themed audio stories, anecdotes and interviews from the Around the Toilet project – this slightly potty sound collage is currently being animated by graphic artist Sarah Smizz.
Sure, toilets don’t usually spring to mind when talking about utopias or sound-art, but the landscape of public toilets is far from ideal for many people. Using sound and animation, Travelling Toilet Tales illustrates how the design of toilets have been based on a historical model of the ‘ideal’ (hu)man, and continues to ignore the diversity of their users.
My personal interest in toilets came from the complexities of accessing toilets as a parent with a physical impairment. Part M of the building regulations advocate that accessible toilets should not have a baby change table. This is primarily because the baby change table can impede access for wheelchair users if it is put in the wrong place, or left down. But like everything in life ‘one size doesn’t fit all’ and when my child was young I found the best ‘fit’ for me was accessible, private toilets with baby changing facilities – where I could take care of my child and also go to the toilet myself.
Interestingly, two of the storytellers spoke about difficulties they had accessing toilets with young children, commenting on the need for both an adult toilet and baby change unit in the same space. One storyteller described the joy of finding a baby change toilet that had a dropdown table, free baby wipes and a seat for breastfeeding.
“It really made me feel accepted whereas in other spaces you just think I’m not meant to be here.”
For her, coming across a baby change table felt like finding gold dust. And the idea of a suitable toilet being like ‘gold dust’ was common theme throughout the piece. We all have our U-toilet-opias.
Storytellers described the indignity of being forced to lie on the dirty toilet floor due to a lack of adult changing facilities, restricting what they eat and drink and being harassed for using the wrong toilet. Organisations like Action for Trans Health and Changing Places are campaigning about these issues. But for many accessing the toilet is such a tricky and unsafe endeavour they are essentially barred from public spaces. There is, in its most literal sense ‘no place’ for them to go, making greater toilet access high on the utopian agenda.
While the storytellers came from very diverse backgrounds, many stories overlapped with common considerations of embodiment flowing throughout the piece. It’s interesting that widespread publicity around the “bathroom bills” in the USA focused on conflicts between religious freedom and equal rights for the trans community. Yet, Travelling Toilet Tales shows how gender-neutral toilets are not just a political issue for the trans community. They also benefit parents, particularly fathers, or disabled people who may have personal assistants of a different gender. A person with a learning difficulty, for example, talked about being told off for using the wrong toilet because he was struggling to read the signs on the toilet door.
“Society hasn’t grown up that much.”
Toilets, and toilet design are issues that impact upon us all. Pensioners describe feeling isolated and staying at home because they fear being “caught short”, whilst lorry drivers restrict what they drink during their working day. One of the most interesting narratives I edited was from a female truck driver, who regularly has to urinate between the load and the unit of her lorry because of public toilet closures. An issue I’d not really considered. Gillian Kemp, who runs Trucker’s Toilets UK and Public Toilets UK, explained that providing public toilets is not a statutory requirement. As a consequence, many local authorities often close public toilets when faced with budget cuts.
Making a bigger splash…
Toilets have traditionally been considered to be an abject ‘bog standard’ space, or a taboo topic – but this piece radically redefines the issue and blends the everyday with the fantastical. From the imaginary toilet of a child to the inventive use of wet tissues instead of a lota, Travelling Toilet Tales takes the audience on an interweaving journey embracing disability, age, faith, gender, class and labour.
Travelling Toilet Tales will be premiered at the Utopia Fair between 24 – 26 June. Somerset House, London – a partnership with the AHRC and the Connected Communities Programme
Thanks to the Around the Toilet team, with special thanks to the Principal Investigator, Dr Jenny Slater.
Images by Sarah Smizz
For many, accessing the toilet is such a tricky and unsafe endeavour they are essentially barred from public spaces.
Nobody thinks of toilets when they talk about utopias and yet the landscape of public toilets is far from ideal for many people.
The Around the Toilet project has recently been awarded two funding grants by the Arts and Humanities Research Council (AHRC). This will allow us to continue the work we started in 2015, carry out new research over the next four months, and participate in the 2016 Connected Communities Research Festival Utopia Fair in London in June, where the outputs of our research will be exhibited.
Our first project, ‘Travelling Toilet Tales’ (led by Jenny Slater) will be an exploration into the ways in which everyday journeys are planned around the un/availability of a suitable toilet. We will be making an animated film based upon people’s experiences of these ‘toilet journeys’: journeys that can’t be taken due to a lack of a suitable toilet, journeys that are re-planned due to a lack of a toilet, imagined journeys based on an ideal world with the best possible toilets… or something else entirely!
This project is a collaboration with Gemma Nash from Drake Music, an organisation working in music, disability and technology, and Sarah Smizz, the graphic artist who drew the stories told in the Around the Toilet workshops we facilitated last year. Our collaborators will transform the toilet tales provided by our storytellers into a soundscape overlaid with animation. This will be presented as a film exploring toilets, place and utopian imaginings to be shown at events and exhibitions, and available online. Details about where you can view the film will be announced in the forthcoming months.
We are also very pleased to be working with Morag Rose of the Loiterers’ Resistance Movement, who will be facilitating a city walk in Manchester around the theme of public toilets and urban space.
Our second project, running in parallel with the first, is ‘Servicing Utopia’ (led by Lisa Procter). Working alongside MA Architect students, Niki Sole and Suki Sehmbi, we will be facilitating workshops which ask attendees to engage with and construct a digital ‘Toilet Toolkit’ (the main project output). The digital/visual toolkit will be aimed at architects to promote the accessible design of toilet spaces.
We will also be making an animated film over the course of the project, documenting insights from the project workshops with architects to illustrate key themes relating to toilet and accessibility.
The films, toilet toolkit and other outputs from both projects will be previewed on 24th-26th June at the Utopia Fair, Somerset House, London, a public event showcasing a range of academic and artistic projects that engage with the subject of ‘utopia’. This year’s theme takes inspiration from the 500th anniversary of the publication in 1516 in Latin of Thomas More’sUtopia. From March to June 2016 the Festival is supporting activities across the UK bringing together researchers and communities to creatively explore diverse perspectives on community futures and what ‘utopia’ means for communities in the 21st Century.
We’re very excited to get started — please keep an eye on our progress by checking the blog and twitter, as usual!
Over the past few months I been a member of the design team for Box Society – a Full Circle Arts and Playfuel collaborative street game project. Playfuel aim to “bring together theatre performance and urban geography”, and together we have been making a light hearted but thought provoking game which addresses disabling barriers and #everydayableism.
The ‘play test’ for Box Society took place in March 2016 with Proud and Loud theatre group, and the public game will be premiered in Manchester City Centre this summer.
Watch this space for further information about this fantastic new street game!
To read more about the background to this project please see Jade Coles blog post here.